Can You Help Me?: Inside the Turbulent World of Huntington Disease shares the surprising, insightful, challenging, and even encouraging, stories of patients and their families who live with Huntington Disease. Having seen patients for more than 40 years, Dr Thomas Bird, a pioneer neurogeneticist, adds a human touch to this genetic brain disease that devastates persons during mid-life when they can least afford it
Inhaltsverzeichnis
- Dedication
- Preface
- 1. Introduction
- 2. Comparing Huntington Disease to Other Brain Diseases
- 3. Genetic Counseling and the Genetic Testing Conundrum
- Part I - Interacting with the Legal and Mental Health Care System
- 4. Can You Help Me?
- 5. It Was Awful
- 6. The Asylum
- 7. Meeting Huntington Disease Patients at Western State
- 8. I Don't Know Why I Did It
- 9. Carkeek Park
- 10. Please Call the Coroner
- Part II - Coping Strategies
- 11. Enjoy the Moment
- 12. High Five
- 13. Let's Try a Magnet
- 14. "I Don't Agree"
- 15. The Greatest Generation and Productive Lifestyles
- 16. Princess in Pink
- Part III - Marriage, Family, and Finances
- 17. For Better, For Worse
- 18. In Sickness and in Health
- 19. Money Problems
- 20. Staying Employed
- 21. We Just Want to Have a Child
- 22. The Judge Said "Are You Sure You Want to Do This?"
- 23. The Thanksgiving Visitor
- 24. Family Opposites
- 25. A Second Wedding
- Part IV - Embarrassment, Injury, Neglect, and Delusions
- 26. Excuse Me Madam and I Am Not Drunk
- 27. Broken Bones
- 28. A Bump on the Head
- 29. Impulse Control
- 30. Reservation Blues
- 31. Is This Negligence?
- 32. Delusions, Hallucinations, and Diabolical Possession
- 33. The Downward Spiral
- 34. A Visit to Willow Park
- V -Summing Up
- 35. Summing Up: "Can you help me?"
- Acknowledgments
- Appendix: The Genetic Test for HD
