Clinical Ethics in Pediatrics

Practical overview of ethical issues arising in pediatric practice, with a case-based approach that grounds bioethical concepts in real-life situations.

Preface; Part I. Core Issues in Clinical Pediatric Ethics: 1. Pediatric decision-making: informed consent, parental permission, and child assent Yoram Unguru; 2. Pediatric decision-making: adolescent patients Jessica Berg; 3. Refusal of recommended treatment Douglas S. Diekema; 4. Adolescent confidentiality Malcolm Parker; 5. Adolescent refusals of intervention (and the non-compliant adolescent) Maureen Kelley; 6. Family beliefs and the medical care of children Roger Worthington and Mark R. Mercurio; 7. Fidelity and truthfulness in the pediatric setting: withholding information from children and adolescents Christine Harrison; 8. Fidelity and truthfulness: disclosure of errors Tom Gallagher and David Loren; 9. Requests for 'non-therapeutic' interventions in children Anthony J. Thomas and Charlisse Caga-Anan; Part II. Ethical Issues at the Beginning of Life: Perinatology and Neonatology: 10. Maternal-fetal conflicts Mark R. Mercurio and Christy Cummings; 11. Fetal interventions and fetal care centers Steven Leuthner; 12. Assisted reproductive technology, multiple births, and the welfare of the child Jeffrey L. Ecker and Howard L. Minkoff; 13. Preimplantation and prenatal genetic testing for inherited diseases, dispositions, and traits Jeff Botkin; 14. Decision-making in the delivery room Mark R. Mercurio; 15. Withholding and withdrawing life-sustaining intervention from neonates Andrew Beckstrom and David Woodrum; 16. The role of QoL assessments in the delivery room and NICU A. Wyatt; 17. International variations in newborn care Annie Janvier and John D. Lantos; Part III. Ethical Issues at the End of Life in Pediatrics: 18. End-of-life care Joel Frader and Kelly Michelson; 19. Futility Norman Fost; 20. Advance directives and DNR orders Jeffrey Burns; 21. Definition of death Geoffrey Miller; 22. Physician aid in dying in children: physician-assisted death - terminal sedation and children Alex Kon; 23. The Groningen protocol Eduard Verhagen; 24. Symptom management in dying children Marcia Levetown; Part IV. Ethical Issues Posed by Advances in Medical Technology and Science: 25. Organ transplantation and the child donor Joel Frader and Aviva Goldberg; 26. Enhancement technologies and children Todd Varness; 27. Cochlear implants and deaf children Halle Salas; 28. Management of disorders of sexual differentiation Joel Frader; 29. Sterilizing procedures in minors with cognitive disabilities Don Brunnquell; 30. Parental requests for intervention on behalf of children with severe life-limiting conditions with poor quality of life (trisomy 13 and 18) Ben Wilfond; 31. Genetic screening and testing Lainie F. Ross; 32. The introduction of innovative technology in practice John D. Lantos; 33. Human subjects research involving children Erik D. Kodish and Valerie Blake; Part V. Children, Public Health and Justice: 34. Resource allocation and triage in disasters and pandemics Jeffrey Burns; 35. Parental refusals of vaccination and school vaccine mandates: balancing parental freedom, child welfare, and public health Douglas Opel and Douglas S. Diekema; 36. Solid organ transplantation and children with developmental disabilities David C. Magnus; 37. Special issues related to the care of orphans Maureen Kelley; Part VI. Special Topics in Pediatric Ethics: 38. Conflicts of interest, relationships with industry, and gifts D. Micah Hester; 39. Training issues and learning new procedures Armand Antommaria; 40. Boundary issues Ian Holzman; 41. Ethics consultation and ethics committees Denise Dudzinski; 42. Physician coverage of community events that appear to conflict with public health and professional goals: the case of physician coverage at youth boxing events Stephanya Shear and Douglas Opel; 43. The impaired, incompetent, or unethical provider Douglas S. Diekema; Index.